Things I want to say
Published on September 23, 2011 By charliemama In Misc

 

HERE IT COMES

 

Went to the doc (neurologist) in Denver on Monday.  Now it's Thursday (late at night). In some ways I wish I had not gone.  Oh, why did I?  I got a packet of information about Parkinson's Disease and, foolishly, I read it.  And had one of "those" questions answered.  You know the ones...where did I come from?  Why am I here?  And, as Harrison Ford in "Blade Runner" says, "How long have I got?"  Well, I figure I've got twelve years at the most.  I probably have only about seven or eight (or even less) due to other factors.  They calculate about twenty to twenty-five years from onset of PD and I'm guessing I was about fifty when I first really noticed the symptoms.  Although looking back I probably had some earlier signs.  And I'm sixty-three (almost) now, so...Diabetes on top of it all, which I've had since age forty-five and if my tests are good today (which they are, except for A1C,) there's no guarantee that things could not go bad fast (we hear of such things all the time.)  And then there's the unexpected.  What if I have a time-bomb like cancer or a stroke or Alzheimer's sneaking up on me? 

 

My worry (on top of all my other worries) is:  I don't care what anyone says, it's hard to know what your priorities are when you know your time and capacity are limited.  What to do and what to do first.  Brains don't automatically just switch into high gear when this sort of news hits you...I've changed, of course, but not enough.

 

Then there's that old burden, the fear.  I can't seem to picture an existence without BFD.  I know that for sure.  No matter who goes first, I can't stand to think about it, let alone actually face it.  So now what?  Denial and dementia?  Or acute anxiety from thinking about it all the time?  I don't see much of a choice.  But please...no more future shocks.  Tell me something good.


I guess I'll just get up and go on...

 

PS:  A long time ago a friend of mine told me, "There's no point in worrying because so far, everything in my life has turned out just fine."  I wonder how she feels about it now.

 


Comments
on Sep 23, 2011

Life does not always turn out the way we envision it, but worrying about it does not change how it turns out. I think that is what your friend was trying to say.

I admire you and BFD and the love you share.  I hope you can have as many years with him as God allows.  YOu have made a great impact on this world already, and it is not over.  Best of luck to the both of you.  And my best wishes and hopes for your happiness.

on Sep 24, 2011

Dear Doc:

Thanks for being so gernerous and kind.  I am feeling much better.  I had a momentary shock and had to do a little whinning but I am counting my blessings and feel that everything's going to be all right.  Many have burdens far heavier than mine, thanks again for being there.

on Sep 26, 2011

So sorry to read this.  Sometimes I wonder if we're all just spinning the wheel of disease/health issues, holding our breath and hoping it won't land on something "really bad."  

Good luck to you Charliemama.